MCC eCare Plan Draft Implementation Guide
0.1.0 - CI Build

MCC eCare Plan Draft Implementation Guide - Local Development build (v0.1.0). See the Directory of published versions

Resource Profile: Family History of Chronic Kidney disease

Defining URL:http://hl7.org/fhir/us/mcc/StructureDefinition/FamilyHistoryofCKD
Version:0.1.0
Name:FamilyHistoryofCKD
Title:Family Member History of Chronic Kidney Disease
Status:Active as of 2020-11-02T17:51:13+00:00
Definition:

This profile constrains the FHIR Family Member History Resource to chronic kidney disease conditions.

Publisher:HL7 International - Patient Care WG
Source Resource:XML / JSON / Turtle

The official URL for this profile is:

http://hl7.org/fhir/us/mcc/StructureDefinition/FamilyHistoryofCKD

This profile sets additional expectations for the FHIR Family Member History Resource to record, search, and fetch first degree family members who have or had chronic kidney disease (CKD) conditions. FamilyMemberHistory.condition is set to “Must Support” and FamilyMemberHistory.condition.code is bound to a chronic kidney disease value set. FamilyMemberHistory.relationship is bound to a first degree family member value set which is a subset of the V3 Family Member Value set.

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

This structure is derived from FamilyMemberHistory

Summary

Must-Support: 3 elements
Fixed Value: 1 element

NameFlagsCard.TypeDescription & Constraintsdoco
.. FamilyMemberHistory I0..*FamilyMemberHistoryInformation about patient's relatives, relevant for patient
... id Σ0..1stringLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred)
Max Binding: AllLanguages
... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... extension:resource-pertainsToGoal S0..*ExtensionExtension

Fixed Value: http://hl7.org/fhir/StructureDefinition/resource-pertainsToGoal
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier Σ0..*IdentifierExternal Id(s) for this record
... instantiatesCanonical Σ0..*canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition)Instantiates FHIR protocol or definition
... instantiatesUri Σ0..*uriInstantiates external protocol or definition
... status ?!Σ1..1codepartial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required)
... dataAbsentReason Σ0..1CodeableConceptsubject-unknown | withheld | unable-to-obtain | deferred
Binding: FamilyHistoryAbsentReason (example)
... patient Σ1..1Reference(Patient)Patient history is about
... date Σ0..1dateTimeWhen history was recorded or last updated
... name Σ0..1stringThe family member described
... relationship Σ1..1CodeableConceptFirst Degree Family Member
Binding: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1032.92/expansion/Latest (preferred)
... sex Σ0..1CodeableConceptmale | female | other | unknown
Binding: AdministrativeGender (extensible)
... born[x] I0..1(approximate) date of birth
.... bornPeriodPeriod
.... bornDatedate
.... bornStringstring
... age[x] ΣI0..1(approximate) age
.... ageAgeAge
.... ageRangeRange
.... ageStringstring
... estimatedAge ΣI0..1booleanAge is estimated?
... deceased[x] Σ0..1Dead? How old/when?
.... deceasedBooleanboolean
.... deceasedAgeAge
.... deceasedRangeRange
.... deceasedDatedate
.... deceasedStringstring
... reasonCode Σ0..*CodeableConceptWhy was family member history performed?
Binding: SNOMEDCTClinicalFindings (example)
... reasonReference Σ0..*Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference)Why was family member history performed?
... note 0..*AnnotationGeneral note about related person
... condition S0..*BackboneElementCondition that the related person had
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... code S1..1CodeableConceptChronic Kidney Disease All Stages (1 through 5)
Binding: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1222.159/expansion (required)
.... outcome 0..1CodeableConceptdeceased | permanent disability | etc.
Binding: ConditionOutcomeCodes (example)
.... contributedToDeath 0..1booleanWhether the condition contributed to the cause of death
.... onset[x] 0..1When condition first manifested
..... onsetAgeAge
..... onsetRangeRange
..... onsetPeriodPeriod
..... onsetStringstring
.... note 0..*AnnotationExtra information about condition

doco Documentation for this format

This structure is derived from FamilyMemberHistory

Summary

Must-Support: 3 elements
Fixed Value: 1 element

Differential View

This structure is derived from FamilyMemberHistory

Snapshot View

NameFlagsCard.TypeDescription & Constraintsdoco
.. FamilyMemberHistory I0..*FamilyMemberHistoryInformation about patient's relatives, relevant for patient
... id Σ0..1stringLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred)
Max Binding: AllLanguages
... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... extension:resource-pertainsToGoal S0..*ExtensionExtension

Fixed Value: http://hl7.org/fhir/StructureDefinition/resource-pertainsToGoal
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier Σ0..*IdentifierExternal Id(s) for this record
... instantiatesCanonical Σ0..*canonical(PlanDefinition | Questionnaire | ActivityDefinition | Measure | OperationDefinition)Instantiates FHIR protocol or definition
... instantiatesUri Σ0..*uriInstantiates external protocol or definition
... status ?!Σ1..1codepartial | completed | entered-in-error | health-unknown
Binding: FamilyHistoryStatus (required)
... dataAbsentReason Σ0..1CodeableConceptsubject-unknown | withheld | unable-to-obtain | deferred
Binding: FamilyHistoryAbsentReason (example)
... patient Σ1..1Reference(Patient)Patient history is about
... date Σ0..1dateTimeWhen history was recorded or last updated
... name Σ0..1stringThe family member described
... relationship Σ1..1CodeableConceptFirst Degree Family Member
Binding: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1032.92/expansion/Latest (preferred)
... sex Σ0..1CodeableConceptmale | female | other | unknown
Binding: AdministrativeGender (extensible)
... born[x] I0..1(approximate) date of birth
.... bornPeriodPeriod
.... bornDatedate
.... bornStringstring
... age[x] ΣI0..1(approximate) age
.... ageAgeAge
.... ageRangeRange
.... ageStringstring
... estimatedAge ΣI0..1booleanAge is estimated?
... deceased[x] Σ0..1Dead? How old/when?
.... deceasedBooleanboolean
.... deceasedAgeAge
.... deceasedRangeRange
.... deceasedDatedate
.... deceasedStringstring
... reasonCode Σ0..*CodeableConceptWhy was family member history performed?
Binding: SNOMEDCTClinicalFindings (example)
... reasonReference Σ0..*Reference(Condition | Observation | AllergyIntolerance | QuestionnaireResponse | DiagnosticReport | DocumentReference)Why was family member history performed?
... note 0..*AnnotationGeneral note about related person
... condition S0..*BackboneElementCondition that the related person had
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... code S1..1CodeableConceptChronic Kidney Disease All Stages (1 through 5)
Binding: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1222.159/expansion (required)
.... outcome 0..1CodeableConceptdeceased | permanent disability | etc.
Binding: ConditionOutcomeCodes (example)
.... contributedToDeath 0..1booleanWhether the condition contributed to the cause of death
.... onset[x] 0..1When condition first manifested
..... onsetAgeAge
..... onsetRangeRange
..... onsetPeriodPeriod
..... onsetStringstring
.... note 0..*AnnotationExtra information about condition

doco Documentation for this format

 

Other representations of profile: Schematron

Terminology Bindings

PathConformanceValueSet
FamilyMemberHistory.languagepreferredCommonLanguages
Max Binding: AllLanguages
FamilyMemberHistory.statusrequiredFamilyHistoryStatus
FamilyMemberHistory.dataAbsentReasonexampleFamilyHistoryAbsentReason
FamilyMemberHistory.relationshippreferredhttps://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1032.92/expansion/Latest
FamilyMemberHistory.sexextensibleAdministrativeGender
FamilyMemberHistory.reasonCodeexampleSNOMEDCTClinicalFindings
FamilyMemberHistory.condition.coderequiredhttps://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1222.159/expansion
FamilyMemberHistory.condition.outcomeexampleConditionOutcomeCodes

Constraints

IdPathDetailsRequirements
dom-2FamilyMemberHistoryIf the resource is contained in another resource, it SHALL NOT contain nested Resources
: contained.contained.empty()
dom-3FamilyMemberHistoryIf the resource is contained in another resource, it SHALL be referred to from elsewhere in the resource or SHALL refer to the containing resource
: contained.where((('#'+id in (%resource.descendants().reference | %resource.descendants().as(canonical) | %resource.descendants().as(uri) | %resource.descendants().as(url))) or descendants().where(reference = '#').exists() or descendants().where(as(canonical) = '#').exists() or descendants().where(as(canonical) = '#').exists()).not()).trace('unmatched', id).empty()
dom-4FamilyMemberHistoryIf a resource is contained in another resource, it SHALL NOT have a meta.versionId or a meta.lastUpdated
: contained.meta.versionId.empty() and contained.meta.lastUpdated.empty()
dom-5FamilyMemberHistoryIf a resource is contained in another resource, it SHALL NOT have a security label
: contained.meta.security.empty()
dom-6FamilyMemberHistoryA resource should have narrative for robust management
: text.`div`.exists()
fhs-1FamilyMemberHistoryCan have age[x] or born[x], but not both
: age.empty() or born.empty()
fhs-2FamilyMemberHistoryCan only have estimatedAge if age[x] is present
: age.exists() or estimatedAge.empty()
ele-1FamilyMemberHistory.metaAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.implicitRulesAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.languageAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.textAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.extensionAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1FamilyMemberHistory.extensionMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ele-1FamilyMemberHistory.extension:resource-pertainsToGoalAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1FamilyMemberHistory.extension:resource-pertainsToGoalMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ele-1FamilyMemberHistory.modifierExtensionAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1FamilyMemberHistory.modifierExtensionMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ele-1FamilyMemberHistory.identifierAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.instantiatesCanonicalAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.instantiatesUriAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.statusAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.dataAbsentReasonAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.patientAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.dateAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.nameAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.relationshipAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.sexAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.born[x]All FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.age[x]All FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.estimatedAgeAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.deceased[x]All FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.reasonCodeAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.reasonReferenceAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.noteAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.conditionAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.condition.extensionAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1FamilyMemberHistory.condition.extensionMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ele-1FamilyMemberHistory.condition.modifierExtensionAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ext-1FamilyMemberHistory.condition.modifierExtensionMust have either extensions or value[x], not both
: extension.exists() != value.exists()
ele-1FamilyMemberHistory.condition.codeAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.condition.outcomeAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.condition.contributedToDeathAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.condition.onset[x]All FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())
ele-1FamilyMemberHistory.condition.noteAll FHIR elements must have a @value or children
: hasValue() or (children().count() > id.count())